When we ask patients who have participated in clinical trials how they might improve the process, these things come up again and again:
- Provide me with information in layman’s terms,
- help me better understand how that information is relevant to my personal situation,
- and make that information easily accessible through the web and mobile devices.
As an industry, Pharma can and must do a better job of communicating with patients and clinical research participants. There’s a clear gap between how clinical trial information is currently presented – primarily from industry, academia and government agencies – and how patients would like to access, view and engage with clinical trial information. With this in mind, we’re pleased to sponsor the Clinical Trial Visualization Redesign Challenge (http://ctdesign.challengepost.com/).
Accept the Challenge
We’re inviting all patients, healthcare providers, web developers, designers and others to help redesign the clinical trial protocol and informed consent document with the patient’s needs in mind through our Clinical Trial Visualization Redesign Challenge.
We’ll provide a sample clinical trial protocol, its informed consent document and associated ClinicalTrials.gov record reference. Your mission, should you choose to accept it, is to transform those documents into resources for patients that improve the:
- Visual appeal
- Potential for web and mobile applications
- Clinical trial experience for patients.
A Few Examples
Last year, the U.S. Department of Health and Human services issued a Health Design Challenge, asking people to “reimagine the patient health record.” The winner was Gravity Tank, who managed to take the current, rote, text-heavy medical record…
… And turn it into something that is more understandable, dynamic, personalized and holistic:
Can you do something similar for clinical trial documents?
How to Participate
You can find all the information you need to learn more about the challenge and how to register on the ChallengePost site. All entries must be submitted by October 2, 2013. You will need to set up a ChallengePost account in order to enter.
You can also get regular updates and join the conversation about the challenge by following the Twitter hashtag #ctdesign.
A total of $75,000 in prizes will be offered in several categories. The judging panel will be weighted heavily with patients and patient advocates. In addition to the juried prizes, there will be a Popular Choice Award based on online votes from the public.
All submitted designs will be made available to the public under the Creative Commons Attribution 3.0 Unported License.
Let’s Make a Difference, Together
“Developing new medicines to meet unmet medical needs is a very difficult business. It is one we have chosen. We need to do a much better job of including the people we are seeking to help.” – Jeff Kasher, V.P. of Clinical Trial Material, Implementation & Transformation, Eli Lilly
“We recognize that patients have a need for better information, and that there are huge opportunities to create more user-friendly and portable options to help them in their healthcare journey through innovation.” – Tom Krohn, Advisor of Clinical Open Innovation, Eli Lilly
We can’t wait to see the many, brilliant ways you will find to solve this problem. Your work will be an important contribution in the effort to transform a component of healthcare in a way that better meets the needs of patients and their families.