Telemedicine in the Clinical Trial Space 1

Telemedicine Photo adapted from http://www.acpinternist.org[/caption%5D

We live in a time of rapidly progressing change, with technology transforming industries and directly affecting lives.  One way in which technology is enabling improved healthcare is through telemedicine:

Telemedicine is the use of telecommunication and information technologies in order to provide clinical health care at a distance. It helps eliminate distance barriers and can improve access to medical services that would often not be consistently available in distant rural communities. (Wikipedia)

Historical research has shown the importance telemedicine can play in the healthcare setting. A 2001 pilot study conducted in nursing homes suggested that use of telemedicine decreased the number of visits to the Accidents and Emergency Department  by 9% and decreased the admissions to the acute care hospital setting by 11%. And that’s in 2001!

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Diving into the Wikipedia Crowd Reply

Photo Courtesy of Pedro Moura Pinheiro at http://www.flickr.com/photos/pedromourapinheiro/2559028008/ Photo Courtesy of Pedro Moura Pinheiro at http://www.flickr.com/photos/pedromourapinheiro/2559028008/%5B/caption%5D

In my previous post, “Stepping Foot in Wikipedia“, I discussed my experiment to engage deeper with the WikiProject Medicine (WP:Med) community to learn the processes and cultural norms within Wikipedia and see if there is a place to build-out a framework for regionalized standard of care information. As promised, I’m here to follow-up on my journey.

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Patient registries and their role in clinical development 2

Photo Courtesy of http://www.niknightswbc.btck.co.uk/ParalympicsLondon2012 Photo Courtesy of http://www.niknightswbc.btck.co.uk/ParalympicsLondon2012%5B/caption%5D

Do you donate blood? Or perhaps you’re an organ donor. If so, you see the value in contributing – literally, a part of yourself – to the greater good. In addition, you may see the potential direct benefit for you or those you care for. Blood and organ donations are now common practice, and it’s easy to see that their value is irrefutable.

What if we extended this concept to data about diseases. Patient registries are ways to bring data together to be used to understand disease, identify clinical trial participants, and, potentially provide statistical power to help develop new disease treatments.

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Examining the microexpert role to improve clinical trials 3

Are you a microexpert?  You might be and may not even know it.

A microexpert is an individual with a uniquely valuable set of experience and information, that combined with other microexperts can create a powerful collection of knowledge of use to a broader community.  When microexperts are collaborating, there’s potential for valuable knowledge to emerge.

Networks of microexperts

Dr. Roni Zeiger, in a recent blog post, discusses networks of microexperts. In her post, Dr. Zeiger  discusses the next revolution in medical progress, as she sees it, is relying upon microexperts in a systemic way to inform decision making around patients and disease.  And patient communities, which are really made up of patient microexperts, are already on the job: More…