Did you know that in 2013 approximately 382 million people worldwide were living with diabetes? Prevalence is third highest in the U.S., where 22.1 million people were living with diabetes in 2011. That’s an increase of 39.5 percent since 2004. Though diabetes is common and rising in prevalence, individual awareness is low, both internationally and in the U.S. Awareness is key to preventing and managing diabetes. Internationally, 46 percent of diabetes cases are undiagnosed. In the U.S., one in four diabetics do not know they have diabetes. And only one in 10 of the 86 million pre-diabetic U.S. adults know about their condition. Without weight loss and moderate physical activity, 15 to 30 percent of those with pre-diabetes will develop Type 2 diabetes within five years. Once people become diabetic, they are at higher risk of serious health complications and their medical expenses become twice as high. More…
Tom Krohn recently wrote about our efforts to share more useful clinical trial site contact information with the public on ClinicalTrials.gov. Many of you—as a patients, caregivers, researchers, or curious citizen scientists—may have already visited ClinicalTrials.gov to explore clinical trials. But, for those who haven’t, or for those who would just like know more, we thought it might be helpful to look into the site’s origins and intentions with our latest infographic.
One of the barriers to clinical trial participation often cited by patients is the lack of high-quality, well-presented information available about clinical trials. Much of the information that is available, is written in research industry language and frame of reference, and misses the mark in communicating with people who have a need to understand that information.
Here at Lilly COI, we’ve experimented with different forms of online communication, by sponsoring app challenges, participating in social media discussions and webinars, maintaining this blog, and developing visual content, like infographics and widgets.
As we explore these mediums, we are keeping in mind that different people have different preferences when it comes to their preferred communication style. Some prefer to read detailed textual descriptions. Some prefer video or audio presentations. Some prefer pictures and graphs. Many like a combination of all of the above!
In several recent studies, researchers have pointed out that modern clinical research suffers from an awareness problem. A 2001 survey show that 85 percent of patients either unaware or unsure that clinical trial participation was an option for them at the time of their diagnosis. That’s why we’re especially appreciative of the all the efforts surrounding International Clinical Trials Day. We can help both current and future patients by spreading the word about the availability of clinical trials, and the possibilities of new and better treatments through research.
International Clinical Trials Day is celebrated each year around May 20, in honor of the day in 1747 that Dr. James Lind is credited for having conducted the first controlled clinical trial in an effort to determine an effective treatment for scurvy. The celebration was originally initiated by The European Clinical Research Infrastructures Network (ECRIN).
This year, we thought it would be fun to present the work of Dr. Lind through the modern lens of ClinicalTrials.gov. We imagined (with a healthy dose of satire), what Dr. Lind’s famous scurvy trial would look like if it were listed on the site today. In addition to providing some entertainment and awareness about clinical research, we hope that the exercise also provides some insight into how information is organized in a typical CT.gov entry.
Click the image below to see the full interactive site. You’ll find more information under each of the tabs, and in some of the hyperlinks.