Imagine for a moment you are a patient considering clinical trial participation. Or perhaps you really are considering clinical trial participation (good for you)! Either way, let’s say you want to understand more about informed consent in clinical trials. If you are like most patients today, you’ll look to a search engine for answers. So go ahead and do that. Head to your favorite search engine and type “informed consent clinical trials.” I’ll wait right here for you to return.
What did you find in the search results?
Here is what we noticed. First, patients have to filter through a lot of information to find what they need. They might find regulatory documents intended for research professionals mixed in with introductory content about informed consent. Second, the introductory content available is primarily static text. This static text is helpful, but it’s not as rich or engaging as it would be if accompanied by visual or interactive media. In short, it’s not easy for patients to educate themselves about informed consent in clinical trials.
Click the image to view the interactive infographic.
According to the Union for International Cancer Control (UICC), 8.2 million people die from cancer worldwide each year. And that number is set to rise. To address the cancer epidemic, the UICC organizes World Cancer Day on February 4 of each year. The day was created “to raise awareness about the disease and to develop practical strategies to address the cancer burden.”
The 2015 World Cancer Day tagline is “Not Beyond Us,” which is intended to highlight that solutions to cancer care are within reach. Four key areas of focus support this theme. For each of the four areas, UICC defines targets to achieve by the year 2025 and the challenge to achieving these targets. UICC also describes how we can overcome the challenge to meeting their targets for each focus area. Learn more about each of the focus areas here:
Click to view U.S map illustrating cancer incidence and locations of enrolling cancer clinical trials.
Reindeer Beagle by Mark Evans is licensed under CC-BY-2.0
Thank you to everyone who has made 2014 such a wonderful year! We have thoroughly enjoyed the conversations with you all and truly value your perspective. The Lilly Clinical Open Innovation (LCOI) team looks forward to continued interaction with you in 2015.
As we bring this year to a close, we’ve had some time to review our recent work, some of which we previously shared here on our blog. We sponsored a Patient Engagement App Challenge, which eventually led to the LVJJ website. The LVJJ website is a pilot project to improve how we present information to patients and caregivers on study websites. We’ve also progressed on our target profiles project, which is aimed at building a consistent framework for clinical trial eligibility criteria. And we created the Lilly Innovation Site Advocacy Group, providing us with access to great feedback from research sites.
Thus far in 2014, we’ve published 37 blog posts and attracted over 15 thousand visitors to the Lilly Clinical Open Innovation (LCOI) blog. Now that 2014 is drawing to a close, we’ve compiled a list of our most popular posts this year. Take a look and see if there are any that you missed.
Our most popular post of 2014 featured an infographic about clinical trial participation. The Patient Participation in Clinical Trials infographic walks viewers through some of the reasons why people do and do not participate in clinical trials. While a relatively small percentage of oncology patients were aware of relevant clinical trials when they considered treatment options – only 16% – the overwhelming majority of clinical trial participants would consider joining another trial in the future.