Datamob aims to show, in a very simple way, how public data sources can be used. We believe good things happen when governments and public institutions make data available in developer-friendly formats. Things that can help save us from bad government and bad decisions. We’re out to find the good things, and get developers excited about the data.
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Through our investigative work at Lilly COI, we are identifying a variety of curation tools that allow knowledge to be packaged and shared. The internet has exploded with information, but since it’s not all entirely clear, these tools provide a means for people to not just collect data, but to engage in knowledge curation. In case you’re wondering how this relates to us, curation is the 3rd “C” in our 4C model.
As our team investigates new trends for content curation, I couldn’t help but think back to a “medication brown-bagging” event in pharmacy school.
Patients would put all of their medications in a brown bag, bring them to the event, and place them on a table. The pharmacists and student pharmacists would pair up with respective patients and help educate them on their medications. Some of the discussions centered around intended use and how the medication worked, but it was also a way for us to screen for drug interactions. People left the event with a better understanding of their health moving forward.
Packaging Knowledge in a “Brown Bag”
Imagine taking the best information about a particular disease state from different internet sources (Wikipedia, WebMD, ClinicalCollections, and others), and packaging it into a virtual “bag.” Now imagine having the ability to share it with others, including social communities centered around certain conditions. Your digital brown bag could be conveniently carried on your smartphone and your laptop. These tools provide an efficient means for curating and sharing your favorite snippets.
Some web-based applications that currently provide this kind of brown-bagging curation include Scoop.it, Bundlr, and BagtheWeb. In an upcoming post, look for my review of the most helpful curation tools for healthcare.
This idea dovetails well with the patient-centered medical home setting. Specialists on the team could clip favorite health snippets (e.g. clinical guideline recommendations, medication monographs, and so on) from any website and create patient-specific “bags.” The patient would also have the ability to add or delete content, allowing them to tailor the information to their unique situation. The knowledge they generate could then be passed or followed by others alike.
Eventually, each patient’s virtual bag would contain all of the best information they might need about their disease, making them an expert of their own condition. Who better to ask for help in clinical development than the experts themselves?