Hearing Patients’ Voices 1

Regina Holliday’s husband Fred died of kidney cancer on June 17, 2009.  His untimely death was a tragedy, but it served to reveal a gap in today’s healthcare landscape: patients’ access to their own medical data.

Telling her story, Regina recounts a lack of communication from Fred’s doctors and significant roadblocks to crucial information about both his history and the state of the cancer.  Not long after his diagnosis, Regina lost her husband.  But in that, she embraced a mission – and started a movement.

The Walking Gallery” is a big part of that movement.  It refers to striking, full-color mural scenes Regina has depicted in acrylic paint on the backs of suit jackets and lab-coats.  The painted garments tell myriad stories: from patients’ struggles to health care enigmas, to reform ideas for national and global issues.  They are worn to conferences and events by a variety of health advocates and friends of the movement.

Regina’s message is that without patients’ unique stories and perspectives, information that the public receives about disease, treatment options, and the whole of patient care is incomplete. More…

The Patient-Centered Medical Home: Where collaboration and support drive patient success 1

What if leaving your doctor’s office were as fulfilling as jumping out of the pool with your 18th Olympic gold medal?  Like an Olympian, you step out the door to the roar of your fans and teammates who have worked alongside you to reach an important milestone in your health.  A few weeks ago Michael Phelps experienced that triumph on the Olympic platform and will be forever remembered for his historical achievements in swimming. But outside the pool and the bleachers are pivotal influencers that Phelps put his faith and trust into. His coach, family, and role models were instrumental for Michael’s historical moments.

Imagine the rewards of a healthcare system built on a platform that allowed pivotal influencers to help patients reach meaningful milestones in a collaborative environment. It exists. In recent years, the Patient-Centered Medical Home (PCMH) model has gained uptake by healthcare institutions and fee-for-outcomes-based Accountable Care Organizations (ACOs). Though not a physical home, the model focuses on the coordination of care in an organized, collaborative fashion. More…

Reinventing Clinical Trials – DPharm 2012 Reply

DPharm“We need to reinvent invention.”  We often hear – including from us on the COI Team – that the drug development model needs to be transformed.  How about disrupted?  And what does it mean to disrupt the current model?  What examples of innovation have been tried and are in the works to disrupt clinical trials and advance research?  These and other questions are the heart of the agenda for the upcoming 2nd Annual Disruptive Innovations to Advance Clinical Trials.  We are looking forward to sharing our perspective at the conference and more importantly, learn from others.   We’ll connect with other change makers, share ideas and solutions, with a commitment to testing new models and openly sharing results.

I’m honored to help kick off the conference with a presentation on “Disruptive Innovation: Moving Beyond the Talk”.  I’ll explore open innovation as a disruptive innovation, and challenge our assumptions of the status quo and what innovation really looks like.  For example, if it is good for everyone, is it really disruptive?  I’ll share examples in our experiment portfolio and others’, with a goal to set the stage for 2 days of creative exchange.  Watch for an update after the conference with my slides.

It is time pharma moves beyond talking about disruptive innovation.  The current tweeking of the processes isn’t yielding the scientific, business or patient results we need.  It will take bold leadership to reinvent invention.  Let’s get on with it!